After the horrible ER visit, we waited until February 24 for her MRI scan. I almost cancelled a couple of times, but ultimately decided to do it for peace of mind. She was the first appointment of the day, which was nice because she had to fast for the MRI. I think the hardest part of the MRI was holding her down while they put the mask on her to put her to sleep.
We waited out in the lobby for what seemed like an eternity. I wish I could remember how long we waited, but we've been to the doctor so many times, it's hard to keep it all straight. They had us come back when they were done and they handed her to me. I held her in my arms in the rocking chair and she looked so sad. We waited about an hour before we could leave. I rode in the backseat with her and she screamed the whole way home.
We fed her food at home and then put her down for a nap. I didn't sleep very good so I went to take a nap the same time as Isla. At 12:58pm, a call from our pediatrician's office woke me up. I answered the call and our pediatrician was on the other line. Once he said, "They found something in her MRI, and oh how do I say this?" My heart dropped, I put the call on speaker and sprinted down the stairs to Jordan.
The pediatrician said, "She has langerhans cellular histiocytosis. It's a rare type of cancer. They found it on her bones." Once I heard that, I remember not being able to stand and just falling to the ground, crying. Jordan was by me rubbing my back. I remember trying to keep calm on the call despite me being on the ground sobbing. He told us that the cancer was rare but had a high curable rate. He told me to google it and I remember feeling a little relief because in the movies, they always tell cancer patients not to google anything. He told me that they needed to see us at Primary Children's the next day at 8am.
Everything after February 24 has felt like a blur. The next day we went to Primary Children's. They did 19 x-rays. Jordan and I sat in the hall listening as Isla screamed for 20 minutes. I really think those x-rays affected her because she hasn't been the same about the hospital since. Then they did an ultrasound on her stomach of her major organs. The girl who did the ultrasound on Isla was someone I went to Jr High and High School with. It was nice to talk to her. She gave a doll to Isla and she absolutely loved it. Afterward, we went to Oncology.
It felt so weird sitting in the waiting area for Oncology. How could this be our new reality? Isla had calmed down from the x-rays and ultrasound. She was being so cute with her new doll.
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