Friday - September 19, 2025
We had to be at the Layton Hospital at 6:45am. It takes us about an hour to get there, so we woke up very early. The boys slept at their grandparent's house. Isla couldn't have anything before being put under anesthesia, but it wasn't a big deal because it was so early. I'd much rather wake up early and do a long drive to the hospital than have her be begging me for food like previous PET scans.
It was such a smooth process. Smooth check in and not a long wait time. The nurses were great. They even had a Child Life Specialist come in and play with her for a bit. She brought a bunch of stuff for Isla to do before she went back. I took a picture while everything was good.
It's such a relief when things go smoothly and she's happy. It makes it a little bit easier. When they took her back, she did start to cry when they put the mask on her. That always breaks my heart, but she was out pretty quick. Jordan & I walked out to the waiting room while they got her ready for the MRI.
Time went by relatively fast. They came and got us and said that she was waking up. Unfortunately, she was not a happy girl waking up from anesthesia. She kept trying to get out of our arms and fighting us. I don't think she really knew what was going on. I kept asking what she wanted and what I could get for her and she said, "Soda!" She had never requested soda before. The nurse got her Rootbeer in a cup with a straw and she calmed down. She loved it.
Before we were about to leave, I made the mistake of putting the rest of the Rootbeer into a sippy cup. I thought that way she could have it in the car and not spill it. Isla was very angry about that. She refused the Rootbeer the whole way home and was very upset. She cried a lot of the drive. I did what I could sitting in the back with her to keep her entertained and happy.
She started wanting to eat, so we stopped by the Wendy's drive thru and got breakfast to take home. We got home at 10:30am! It was great to have the rest of the day to be with the boys and Isla. It was a good scan day.
We got the results back and they said that there isn't any LCH on her brain. But the lesions on her skull have gotten bigger since her PET scan two weeks before. She needed to start the new chemo fast. My next post will be about getting the port and her first round of IV chemo. Thank you for your support and love for Isla! She is the strongest little girl and I am so grateful to be her mom.
Love, Megan
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