I am so sorry for not keeping up on the blog. The holidays are always crazy with little kids and then add everything with Isla... It has just been busy. I have a goal of getting these done before the New Year, so here we go!
Tuesday - November 18, 2025
Isla had her fourth PET scan scheduled for 8am. The first PET scan since starting the new chemotherapy. The anxiety was eating me alive. I think I've mentioned in previous posts how the stress has been affecting me physically. I have a therapist that has had amazing advice on how to cope and what to do when I feel low. Maybe someday I'll do a post on what has helped me during this whole process.
I was so happy that her PET was early. It did still take some time to get her back there. I think we waited about two hours before she was taken back. PET scans don't usually take very long. They came to get us because she had woken up from the anesthesia. She was very excited to see us. It was so sweet. Isla was so hungry and basically inhaled an uncrustable sandwich.
We had a nice conversation with the nurse that was watching over Isla. She told us all about her grandson who is Isla's same age. The nurse was smitten by Isla and said that she wanted Isla to marry her grandson. It got my mind off of everything stressful.
In the past, we've received news usually the day of or the following morning. I figured because this appointment was so early, we would hear the results soon.
The rest of Tuesday went by, no call.
I didn't know how to feel. Maybe the doctor is just busy? She'll probably call us tomorrow morning.
Wednesday - November 19, 2025
I made sure my phone was right in front of me and that my apple watch was fully charged. My apple watch is usually what notifies me when someone is calling. We waited and waited. Silence.
Friends and family kept messaging me asking me if I had heard anything.
"No, I haven't heard anything yet."
Hours went by. I kept stressing out to Jordan. I was sure that it was bad news and the doctors were trying to come up with a game plan. I prayed and prayed. I would cry and then try to distract myself. I even went to Costco. My thoughts were all over the place. Her brain, her brain, it got to her brain. I couldn't take it anymore.
About 30 minutes before Oncology closed, I got a call from our Oncologist.
They sounded happy. I was cautious. The Oncologist then said, "I have great news. This chemo is working. Her bones are already almost completely healed!" Relief swept over my body. I felt like I could finally breathe. It was the best feeling in the world. I sobbed the whole rest of the day. We celebrated with our kids and called everyone we could.
The Oncologist told us that we were still going to do four more rounds of chemo to make sure we get rid of it. She will then get her final PET scan and her port removed! There is a light at the end of the tunnel! So incredibly happy and grateful for good news. We are so blessed. Her next round is December 1-5.
Love, Megan
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